Who We Are
Cure MCOPS12 is a nonprofit organization dedicated to improving the lives of those affected by Microphthalmia syndromic 12 (MCOPS12) and accelerating research to find a cure. It should also provide a platform for discussion between family members, physicians, and subject matter experts taking care of MCOPS12 patients.
Meet the Team
Founder & Chairman
Reinhard is from Salzburg, Austria. He´s a chemist by profession, currently leading a development unit in a pharmaceutical company.
The devastating diagnosis of his son´s ultra-rare and debilitating disease, with no available treatment options, has changed his life. Together with his wife Edith he founded Cure MCOPS12 to make the impossible possible – finding a therapy for MCOPS12 patients to enable them a better and brighter life.
In his spare time Reinhard loves doing sports and spending time in nature – alpine hiking, skiing, or having a swim with his son Simon!
Co-Founder & Vice Chairwoman
Edith is from Salzburg, Austria. In addition to her job as a social worker, she manages daily life for her son – everything from doing physiotherapy at home, to cooking his favorite foods. Seeing Simon happy is truly the greatest gift she could ask for.
From day one, Edith and her husband Reinhard promised each other that they would do whatever it takes to support and give the best life to their little sunshine, Simon. She believes that her husband’s devotion and knowledge of drug development, their friends, and the MCOPS12 community will lead them to finding a cure for MCOPS12.
When Edith is not busy with family or work duties, you can find her in the beautiful mountains surrounding Salzburg – she enjoys going for a hike or running to clear her mind!