Who We Are

Cure MCOPS12 is an association dedicated to improving the lives of those affected by Microphthalmia syndromic 12 (MCOPS12) and accelerating research to find a cure.

It should also provide a platform for discussion between family members, physicians, and subject matter experts taking care of MCOPS12 patients.

Reinhard Pell

Founder & Chairman

Edith Pell

Founder & Vice Chairwoman

 

Edith and Reinhard are the parents of a three years old son – and love of their lives – Simon. After receiving Simon´s devastating diagnosis of MCOPS12 in 2018, and realizing the disease is such rare that no treatment or even understanding of the disease existed, they promised to find a therapy for Simon and all other MCOPS12 patients. 

 

Reinhard has a PhD in chemistry and works in technical research & development for a pharmaceutical company. Edith studied social work and is employed as a welfare worker.