Our GoFundMe Campaign is Officially Live!

We’re happy to announce that our GoFundMe Campaign is officially LIVE! 🥳 Please find it here: https://gofund.me/a0081c7c !

It has been a long journey to get here, but we’re excited to start fundraising for one of the two treatment paths we’ve identified for MCOPS12 Patients.

The first path is ongoing and focuses on testing drugs in disease models to improve the two major symptoms of MCOPS12 patients – their severe and progressive movement disorders and their cognitive impairment.

However, it is critical that we tackle the genetic root cause of MCOPS12, because if we are able to successfully do this, then we can stop the disease from progressing and improve patients’ symptoms.

We’ve FOUND a therapy called Antisense Oligonucleotides (ASO), and this has the potential to do just that – stop the progression of the disease and improve the symptoms! A therapy that is new and innovative and not something we thought would ever be possible.

This therapy could be LIFE CHANGING. It could make basic things such as communicating basic needs, sitting, and walking – actually POSSIBLE.

Our first goal is to raise 75,000€ to design and develop a proof of concept for this ASO therapy to determine if this is truly a viable treatment path.

However, this potentially life-changing therapy is not cheap, and we can’t fund this without the support of all of YOU… We are asking YOU today – to help make the impossible, POSSIBLE.

Help us give ALL MCOPS12 patients a CHANCE at a better life – that allows them to live without so many limitations – with a chance to make their OWN mark on this world.

How to Participate?

  1. DONATE on our GFM Page: https://gofund.me/a0081c7c
  2. SHARE our Campaign on your social media with our campaign hashtag: #seekingacureforsimon
  3. SHOW off your support for our cause with your #UNselfie (It’s a selfie with a caption or a sign that states you’re supporting our cause for #GivingTuesday and why) for #GivingTuesday using our campaign hashtag #seekingacureforsimon

Thank you all for your Support and helping us make the impossible, POSSIBLE!

Cure MCOPS12 in collaboration with A Cure for Sophia and Friends have launched a new Crowdfunding Campaign via Classy! Donate TODAY and Be a Champion for a Cure!