Hey Everyone! We have some EXCITING news we’d like to share with you all! We have signed a contract with Everlum Bio, a Rare Disease Lab, that will design and then produce a shortlist of different Antisense Oligonucleotides (ASOs) that will initially be tested in a lab model consisting of Simon’s neurons!
During this testing phase, they will determine which ASO is most effective in deactivating the defective gene that causes MCOPS12!
BUT in order for us to be able to make this a reality, we NEED the WHOLE €75,000. We are sooooo CLOSE! We just need a little over 15K to make this happen!
We have a little UNDER TWO WEEKS to go – to make the Impossible, POSSIBLE!
SHARE our Campaign: gofundme.com/f/seeking-a-cure-for-simon
FOLLOW us on social media @curemcops12
TELL your friends and family about our cause!
DONATE – every amount MAKES A DIFFERENCE!